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Dup15q Alliance

Dup15q Alliance

Dup15q Alliance

2 active Campaigns
2 campaigns

United States, United Kingdom

www.dup15q.org

Mission

Dup15q Alliance provides family support and promotes awareness, research and targeted treatments for dup15q syndrome.

Open Projects

Help child with rare disorder visit a clinic!
Dup15q Alliance

Help child with rare disorder visit a clinic!

Children
United States

We have facilitated the establishment of 9 dup15q clinics around the United States. Our goal is for each of our 900 families be able to visit a clinic to receive the best medical care available for their children with this rare disorder. Dup15q Alliance provides family support and promotes awareness, research and targeted treatments for chromosome 15q11.2-13.1 duplication syndrome. Symptoms of this rare genetic disorder include autism, seizures and developmental delays.

Support Miles for Myles (Dup15q Alliance)!
Dup15q Alliance

Support Miles for Myles (Dup15q Alliance)!

Health & Physical Wellbeing
United Kingdom

Dup15q Alliance provides family support and promotes awareness, research and targeted treatments for dup15q syndrome. Symptoms of this rare genetic disorder include autism, seizures and developmental delays. Every two years we hold a conference for affected families to provide education on the latest treatments for dup15q and to create a sense of hope and community that is often difficult for our 1,000 registered families to find locally due to the rarity of the disorder.

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Donors

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Contact Us

admin@hasanah.org

HasanaH All rights reserved 2025
Privacy PolicyTerms and ConditionsCookie PolicyTranslation Disclaimer